Research: Dysplasia in IBD

Do you have Inflammatory Bowel Disease? Are you thinking about or have already had your colon removed due to a diagnosis of 'dysplasia' (a pre-cancerous change in the lining of the colon)?

If yes, our research team at St Mark's Hospital want to hear your views! 

A little bit of background...

People with longstanding Inflammatory Bowel Disease affecting the colon, are recommended to have surveillance colonoscopies to look for and remove pre-cancerous cell changes called ‘dysplasia’ before they become cancerous. 

 

If dysplasia is found and it cannot be removed during colonoscopy, doctors must advise their patients about their management options. This can mean 1) more frequent colonoscopies to monitor the area or 2) surgery to remove the colon with the end-result of an ileostomy or an ileoanal pouch. 

 

Weighing up the risks and benefits of these options can be difficult for these patients, especially as a lot of them are actually in remission from their Inflammatory Bowel Disease and feel well. 

The aim of this research project

Our project aim is to find out more about what influences patients’ decisions about their their treatment and ways we can better support patients making these decisions in the future. We will feedback what you say back to IBD doctors and nurses nationally and help create a patient-friendly decision tool.

What do I have to do?

Please read our Participant Information Sheet and complete our questionnaire using this weblink: https://goo.gl/forms/Gnvrga854ItkCGCq1

 

The questionnaire can be filled in anonymously but do leave your details at the end of the questionnaire if you would like to be entered into our prize draw for retail vouchers (£100 value) to thank you for your efforts or if you would like to take part in an interview.

 

The research survey closes on 28 February 2019.