Low Anterior Resection Syndrome: a 2020 Tripartite Vision project

Background:

We know that some patients have poor bowel function after surgery for rectal (back passage) cancer, a condition known as Low Anterior Resection Syndrome (LARS). It is increasingly recognised that many people experience LARS but there is no agreement on what symptoms or problems should be included in this syndrome. This makes it difficult to find out how many people are affected and to assess the causes and treatments for Low Anterior Resection Syndrome. 

Invitation to participate:

We are seeking patient volunteers who have had surgery to remove a rectal cancer to contribute to an international consensus on the definition of Low Anterior Resection Syndrome. It does not matter if you did or did not have a temporary ileostomy, or if you needed any other treatment for the cancer but your ileostomy MUST be now closed (if you did have one). It does not matter if you personally have good or poor bowel function. We are just keen to hear from as many patients as possible.

This study is being run simultaneously in three languages (English, Spanish and Danish). The consensus exercise will run from late March 2018 and consist of three rounds of electronic voting. 

There will also be an opportunity for UK-based patients to attend a face-to-face consensus meeting after the voting rounds but this is entirely voluntary, and anyone who just wants to join in the electronic voting is most welcome to contribute to that part.

To register your interest, please complete the following quick registration questionnaire before 9 March 2018: https://www.surveymonkey.co.uk/r/LARSforUKPatients.

This article has been published on behalf of the Tripartite LARS Scientific Committee.